The short version is that he thought Esme looked perfectly healthy and on track in all areas.
He said that she sounds like a classic 'reflux' baby and that most likely she had 'pseudo-seizures' (they look like seizures but actually aren't) caused by acid reflux. Because she really only seemed to seize once officially, with a small follow up the next day, he felt he didn't have enough data to really rule out seizures for sure without an EEG.
The wait times for EEGs are minimal and so last Wednesday we took Esme to the hospital to get this test out of the way. I'm sure glad that it is over.
Imagine a sleep-deprived baby (we were required to bring her sleep deprived so she would sleep as soon as she was connected to the machine), getting her head marked up in a zillion places, being scrubbed with an abrasive in those same zillion places, then getting goop and wires attached to those same zillion places. All while needing her nap and very scared.
Afterwards I joked that we probably didn't need to deprive her of sleep before the test because the amount of screaming she did wore her right out. She was SO Sad!! But it was a necessary test! So we just worked to make it as easy as possible with the least amount of fuss.
Now we wait for the results. Hopefully within 2 weeks we will have heard back from the pediatrician with the report. We're praying for an all clear.
Here are some pictures of Esme hooked up to the machine at the end of the test. She wanted to keep sleeping at this point but had to get up to go home.
They even had to 'strait-jacket' her hands to keep her from pulling off the wires. If you know Esme, you will know how much she hates her arms being trapped. |
So hard to wake up. |
All done. Getting cleaned up. |
4 comments:
Poor Baby :(
That is one of the saddest blog posts! I'm so sorry Kristin and Esme (and Alain too). What a tough experience. We will pray for answers!!
Thanks for praying Jemma! It was a very sad time.. so glad it's over. Looks like you have a blog too? I'd love to read it. It's fun to see what people are up to, since we don't seem to connect very often in real life :)
I don't think I had ever seen this post before...it was in the days before I checked the blogs regularly. How truly blessed we are to have healthy babies who don't have to go through much of this stuff. :)
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